Caregivers play a crucial role in the success of individuals recovering from cardiovascular events, providing support such as transportation to medical appointments, emotional encouragement, and medication management. Despite their critical role, many caregivers struggle to navigate complex health challenges without proper education or training. Researchers from UHN’s KITE Research Institute explore the needs of caregivers and highlight the importance of tailored support programs to improve patient recovery and caregiver well-being.
In a two-part study, the research team surveyed 86 caregivers about their background, quality of life, and caregiving experiences. The online survey revealed that while caregivers have a moderate to high level of understanding of cardiovascular disease, most have never received any formal training and report challenges in accessing reliable information and resources.
To gain deeper insights, the team conducted 16 in-depth interviews. These conversations uncovered four key themes, highlighting the support and education needed by caregivers—forming the acronym H.E.L.P.
● H: Helpful resources – more practical resources to handle everyday challenges.
● E: Empowerment – support and empowerment through direct access to health care professionals.
● L: Lived experience network – connection with peers who have similar experiences.
● P: Psychological support – managing stress and maintaining personal well-being.
These findings reveal the diverse needs of caregivers and the importance of tailored educational programs that offer social and emotional support. By addressing these gaps, these programs can enhance patient recovery and caregiver well-being, ultimately improving cardiac rehabilitation outcomes.
Ana Paula Delgado Bomtempo is the first author of the study and a former international trainee from the Federal University of Juiz de Fora.
Dr. Gabriela Melo Ghisi is the senior author of the study and an Affiliate Scientist at the KITE Research Institute. Dr. Melo Ghisi is also an Adjunct Professor in the Department of Physical Therapy at the University of Toronto.
This work was supported by UHN Foundation.
Bomtempo APD, Ghisi GLM. Educational Needs of Informal Caregivers in Cardiac Rehabilitation: a Mixed-Methods Study. Eur J Cardiovasc Nurs. 2025 Jan 7. doi: 10.1093/eurjcn/zvaf001.
(L-R) Dr. Gabriela Melo Ghisi and Ana Paula Delgado Bomtempo.