In a recent realist review at The Institute for Education Research (TIER) at UHN, scientists investigate How and Why diabetes care training programs for care providers from vulnerable communities may or may not work. Their findings offer insights into strategies to improve healthcare outcomes and promote health equity among vulnerable groups.
Diabetes affects around 5.7 million Canadians, with foot ulcers being one of its most severe complications. If left untreated, diabetic foot ulcers can result in amputations and higher mortality rates compared to other diabetic complications. Amputations can be prevented with regular foot screenings. However, shortages of clinicians, coupled with inadequate consideration of socioeconomic and cultural disparities, have restricted access for high-risk groups.
Indigenous Peoples, Black, and South Asian Canadians often encounter elevated risks of disease complications due to limited access to healthcare services, cultural and socioeconomic barriers, and increased prevalence of conditions such as obesity and hypertension.
In response to these challenges, upskilling programs have emerged as a strategy to train care providers from these communities—including healthcare workers, personal support workers, and family caregivers—with the skills to conduct foot screenings and help identify potential complications early on.
"While previous research suggests that these programs improve patient outcomes, little is known about how they are developed and in what situations they are effective. By investigating their development process, we aim to provide valuable insights to create better programs in the future," explains Dr. Nicole Woods, Senior Scientist at TIER and senior author of this study.
Dr. Woods and a team of UHN researchers examined 52 existing studies on upskilling programs that employed diverse methodologies and took place in outpatient clinics, hospitals, or community centers.
Researchers found that considering the specific needs and circumstances of the communities served by these programs helped increase the number of people using the services. By addressing disparities like lack of health literacy, inadequate patient-provider communication, and social service disconnection, these upskilling programs trained care providers to deliver accessible care in community settings while also performing other roles like providing patient education, connecting individuals to community services and advocating for patients.
"Incorporating cultural sensitivity into the program was crucial. Cultural competency training enhances a care provider’s ability to provide culturally sensitive care to patients from marginalized communities," highlights Dr. Samah Hassan, postdoctoral researcher and first author of this study.
Researchers also found that providing clearer incentives, continuous training, defined competencies, and ongoing evaluation of training effectiveness for care providers would significantly impact the retention of care providers as well as the maintenance and success of these programs.
Preventive foot care is complex and requires a holistic approach and the collaboration of diverse care providers. Implementing structured healthcare pathways and coordination would help sustain the success of these programs.
The results of this review suggest that these initiatives hold promise in addressing healthcare disparities. However, ongoing evaluation and strategic development are needed to maximize their effectiveness.
"By focusing on these areas, we can ensure that upskilling programs for care providers not only continue to bridge healthcare gaps but also contribute to a more equitable and accessible healthcare system for all," concludes Dr. Woods. "As researchers and policymakers collaborate on these efforts, the potential for positive change in diabetes care for marginalized communities becomes increasingly attainable."
We would like to acknowledge Dr. Val E. Rac and Dr Brian D. Hodges for their invaluable guidance and support throughout this project. We are also grateful to the whole team (Patti Leake, Saul Cobbing, Catharine Marie Gray, Nicola Bartley, Andrea Etherington, Munira Abdulwasi, Hei-Ching Kristy Cheung, Nikki N. Woods, and Samah Hassan) for their expertise and assistance. This project would not have been possible without their continuous support and hard work.
This work was supported by Future Skills Canada and the UHN foundation. Dr. Valeria E. Rac holds a Tier 2 Canada Research Chair in Health System and Technology Evaluation
Hassan S, Rac VE, Hodges B, Leake P, Cobbing S, Gray CM, Bartley N, Etherington A, Abdulwasi M, Cheung HK, Anderson M, Woods NN. Upskilling programmes for unregulated care providers to provide diabetic foot screening for systematically marginalised populations: how, why and in what contexts do they work? A realist review. BMJ Open. 2024 Jan 22;14(1):e081006. doi: 10.1136/bmjopen-2023-081006.
Dr. Nicole Woods, Senior Scientist and Director at The Institute for Education Research.